Showing posts with label sickle cell anemia. Show all posts
Showing posts with label sickle cell anemia. Show all posts

Saturday, November 29, 2008

Where Am I?

Hi,
Remember Me? Where have I Been? What Is Going on With Me? You know its never a dull moment for me right. I have one moment of glory only to be buried in grief and suffering...i think thats what im here for to suffer.
I've dissapeared for quite sometime so this is why.
About three weeks ago I went to work and got off early I sent off that college essay good thing i did..because that Monday (officially two weeks ago) I ended up in the E.R....thats right.
Phenumonia
Thats what i thought i had. I woke up with severe chest pain and not being able to breathe and with me being used to acute chest's it was no biggy but a trip to the hospital for a few antibiotics and back home to heal up..well for once when it came to my health i was wrong. The doctor i will say his name becuase i think he is an idiot "matal" told me that i didn't have phenumonia therefore it was just sickle crisis..Not it wasnt i told him. Then i heard him telling some fellows to just mark it down as an asthma attack. The moron then came back and gave me a choice good for him getting his ass kicked wasnt one of them. Either i could go home or stay and manage my pain. I ignored my first choice because i knew something was wrong and i stayed. They did tests of all kinds!
Ports..
I started spiking fevers and being as though the right side of my lung was the only one hurting they did and MRI and tested the blood in my ports and guess what i had a infection in my port that caused lung problems. It formed types of sores if thats what you want to call it around my lung so when my lung expanded the sores hit my rib cage therefore that is where the pain was coming from! That doctor would of let me go home to die..i read about it and it said the only way people die from it is from the pulmonary problems being untreated i caught it in time. I was suffering in this hospital for two weeks now. Vomiting,allergic reactions to the antibiotics, hooked up to 5 different antibiotics because before they didnt know what they were treating.
Surgery
My Ports Were REMOVED! This is the second infection i have had with them and this was the worst one so i had no choice i can talk to you later about what my doctor is planning on having me do to bring my iron down being as though thats why i had the ports in the first place to have better access and to take overnight meds to bring my iron down. I Had a mini surgery yesterday to put a PICC line in...The lady told me i wouldnt feel no pain only for me to roll over and wake up to a swollen arm i showed the docs and they rushed me to ultrasound to make sure it wasnt clotting it wasnt it just has to heal up.
Home
Now that i have the PICC line they are trying to get me home to do antibiotics because the PICC line lasts for up to 6 weeks and its no point having me in a hospital when i feel great i mean ever since they started treating me with the right antibiotics i felt wonderful and i am sooo ready to go home i have cried so many times because of wanting to go home.
Thanksgiving
I hope all of you enjoyed your thanksgiving, they were kind enough to give me a go home pass for four hours to enjoy thanksgiving dinner with my family i enjoyed being out of here so much that when it was time to come back i cried and made all my other cousins upset and angry because they couldnt do anything to help me. They eventually calmed me down and i left. Standing at the hospital i remembered the words i wrote on this wall after sliding on this cords at came from tree post to tree post...it went as this.
"I CAME. I SAW. I CONQUERED". Im not letting these demons keep me down i have faith that i will get out and things will be great for me after that.
Links
Sorry i havent made it to journals just give me time. Here are a few links to check out about whats going on with me!
a little info about the bacteria
Actual photo of what my Triumph Port looks like on my right side
Photo and info the infusa port on my left side.
Photo and info about the PICC line placed in me now.

Tuesday, October 28, 2008

Wrong Start To An Early Week


Essay
I Revised my Essay alot. I went and found a thersarus to use for words that i used way to many times, also added a few more sentences and changed others. And I love it and i feel more confident about it. Friday i will be getting a $40 money order to ship it back..SH*T i just remembered that i forgot to get a folder when i was at the hospital today to mail it in. Now im going to have to go to the post office.
Hospital
I had apheresis today it went okay now im getting three bags of blood instead of four and coming once a month as usual. Im starting to do my desferal medicine more often at night. Im trying to hurry and get this iron down so i can be done with the hassle of doing this every night.
Work
What can i say the customers dislike me just as much as i hate them. Hates a strong word but it describes my feelings for them ignorant weirdo's! I worked sunday for like 2 hours because i chose to go home early because my boss called me into her office lol. Apparently i got reported three times for doing my job so i told my boss i will not do my job anymore i will kiss they a$$ just as much as they do. her reply "no please do your job your a great cashier".
Why i got reported those three times?
A. I wouldn't let a woman use her husbands card (we're not allowed to) she went back to my boss and lied and said i rolled my eyes i wish i did at the uni-bomber that way it could of been true she said to me though "dont roll your eyes at a customer" and i told her "Last time i checked my mother was at the dollar store" Okay rewind that could of been avoided but i dont care..
B.I wouldn't call on the loud speaker that there was a cat under a car...I work in a shopping plaza with other stores so its a huge parking lot and thats not on my job description to page for a cat under a car. when you start your engine the cat runs. She got mad that i told her i can't. So she told.
C. After i finished ringing a customer up i asked her to take her basket to the front she gets mad.
My boss asked me to stay or i can go home so you know which one i chose on a sunday morning, home. Screw your customers thats how i feel they are ignorant, spoiled, aggravating, i can go on, oh and their kids? Worse then them, tell them what to do..that wont be mine thats for sure. So i went back on monday and my boss asked if i was okay i said "yea but i still hate your customers" she sighed and said dont be like that. Honestly in my heart 3 makes it bad for the rest of them. I don't do what i used to do which was my job. Im bored with this routine of work. Deal with the same ignorant customers who have money to waste on stuff they dont need then come back the next day begging for coupons for their purchase of that day. At kohl's its a "yes we can policy".
I honestly can say this is one of the worst jobs i ever had and im looking for a new one maybe something different i cant do retail. Im so irked with this job my lunches are extended, breaks extended, late, clock in real early, dont ask for credit cards, i just ring em up and get em out. They ask me my opinion about a shirt i tell them MY opinion- its ugly. theres nothing cute in that store anyway its the worst colors and patterns put together ever. They put they customers over employee's- bad mistake.
Im not feeling good so im not going in tomorrow im having sickle crisis in my hip and im having an allergic reaction to the exchange transfusion they can run the store without me hopefully i wont be missed cuz i will not miss them.